OUR MISSION
GRAPPA is an amazing network of people interested in psoriasis and PsA. Through involvement, you can share ideas, collaborate on research, and lead projects aiming to improve the lives of people living with psoriatic disease.
OUR HISTORY
About Us
Originally inspired by the Assessment in Ankylosing Spondylitis Working Group (ASAS), GRAPPA was formed in 2003. GRAPPA has pulled together many different groups, including preeminent researchers and thought-leaders in psoriatic arthritis (PsA) and psoriasis (PsO). In 2015 a team of Patient Research Partners was added to round out our perspective. The idea was to form a consortium of rheumatologists, dermatologists, radiologists, epidemiologists, patient representatives and others who would like to contribute to the field of PsA. At the inaugural meeting in 2003, a consensus exercise started the group toward prioritizing domains of inquiry in PsA and PsO. Subsequent annual meetings have focused on identifying and initiating research projects, advancing standardized criteria for psoriatic arthritis registries, and developing treatment guidelines for PsA. GRAPPA is a 501(c)3 nonprofit organization with offices in Seattle, WA and members from around the world.
Today, more than 1,000 thought-leaders participate in GRAPPA including rheumatologists, dermatologists, radiologists, geneticists, methodologists, epidemiologists, patient research partners, and biopharmaceutical industry representatives. Approximately 75 percent of our members live and work outside North America; creating a truly international effort.
Our Accomplishments
Publications authored by GRAPPA members every year since 2005
Publications authored by GRAPPA members every year since 2005
Development of evidence-based review of psoriatic arthritis (PsA) treatments published Spring 2006 and publication of refreshed Treatment Recommendations in 2016
Participation as the PsA working group at every OMERACT meeting since 2004
Meetings held adjacent to AAD, EULAR and ACR (2004 to the present)
GRAPPA Annual Meetings at various locations around the world in 2005 to the present. See the Events tab for information on the latest Annual Meeting. A supplement covering the Annual Meeting activities has been published every year since 2006 in the Journal of Rheumatology
More than a dozen committees are pursuing a variety of research projects
Response Measure Project was completed in 2014 after participation by more than 40 centers worldwide
GRAPPA has produced video training modules to learn exams such as the PASI, NAPSI, PSSI, PGA, Palmar-Plantar, Axial Spine and others. These are available through our partner ePharma Solutions. Contact [email protected] for more information on accessing these online trainings
GRAPPA EU
GRAPPA also operates in the EU! The mission of GRAPPA EU is to further the work of GRAPPA with a specific focus on participating in research projects relating to psoriasis and psoriatic arthritis in the European Union.
Our Most Commonly Asked Questions
FAQ
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One representative from each country patient advocacy organization may join GRAPPA. Since this position is taken already for most major countries, we suggest you join organizations for lay people interested in learning more about psoriatic arthritis. In the US, please visit the National Psoriasis Foundation. Internationally, a good resource is the International Federation of Psoriasis Associations.
Persons employed by Industry may not apply for regular membership. However, industry representatives may attend programs as sponsor /corporate members. We are deeply appreciative of industry support, which is yearly and enables those working for our corporate members to attend our events. Industry companies may join GRAPPA as Gold Leaders ($65,000/year dues) or Platinum Leaders ($90,000/year dues). Other dues levels may be negotiated for start-up biotechnology companies not able to afford the Gold level or for larger multi-national firms wishing to contribute more to GRAPPA. Contact [email protected] for more information and a fact sheet on additional benefits of corporate membership.
No dues are charged to regular (core) members at this time.
Prospective members must submit a membership application via the online application form. To be accepted to membership, you must have two current GRAPPA members recommend you for membership. You will also be asked for a short one or two page version of your CV once you have applied.
Members are kept apprised of current research and data relating to diagnosis, treatment and pathogenesis of psoriasis and psoriatic arthritis. They are asked to contribute to research in these areas. Members are also available to participate in meetings held adjacent to rheumatology and dermatology meetings. Inactive members who have not attended meetings, served on committees or otherwise contributed volunteer time to GRAPPA will be asked to become active or drop membership after three years.
No. GRAPPA does not allow for any indirect or overhead costs to be applied to any of the grants we award.