HELPFUL PATIENT LINKS
The American Academy of Dermatology was founded in 1938. It is the largest, most influential and representative dermatology group in the United States. With a membership of more than 19,000, it represents more than 16,000 physicians worldwide. It is committed to: advancing diagnosis and medical, surgical & cosmetic treatment of the skin, hair and nails.
The American College of Rheumatology (ACR) is dedicated to treatment, research and patient care of those with rheumatic diseases.
ASAS is an international society of experts in the field of spondyloarthritis. The mission of ASAS is to support and promote translational and clinical research of spondyloarthritis.
Psoriasis is an autoimmune skin condition that causes itchiness and discomfort. Plaque psoriasis is the most common type. It causes thick, scaly areas of skin. While there isn’t a cure, psoriasis treatment can help manage symptoms. Your provider may prescribe special creams or ointments for psoriasis.
The European Association of Dermatology and Venereology (EADV), organizes annual one main congress in one of the European capitals and one spring meeting, offers training, fostering courses and online teaching for CME.
The European League Against Rheumatism (EULAR) represents people with arthritis/rheumatism and health professional and scientific societies of rheumatology of all the European nations. The aims of EULAR are to reduce the burden of rheumatic diseases on the individual and society and to improve the treatment, prevention and rehabilitation of musculoskeletal diseases. EULAR fosters education and research in rheumatology and promotes the translation of research advances into daily care and fights for the recognition of the needs of people with musculoskeletal diseases by the governing bodies in Europe.
Europso was founded in November 1988 and is a federation of psoriasis patients’ associations based in the geographic region of Europe. As an umbrella organisation operating within Europe, and as a Member of IfpA we have close ties to the worldwide psoriasis movements – the International Federation of Psoriasis Associations (IFPA), the United States-based National Psoriasis Foundation (NPF) and to the Nordic Psoriasis alliance (NORDPSO).
Founded in 2004, the International Psoriasis Council (IPC) is a dermatology-led, voluntary, global nonprofit organization dedicated to innovation across the full spectrum of psoriasis through research, education and patient care.
OMERACT (Outcome Measures in Rheumatology) is an independent initiative of international health professionals interested in outcome measures in rheumatology. Over the last 20 years, OMERACT has served a critical role in the development and validation of clinical and radiographic outcome measures in rheumatoid arthritis, osteoarthritis, psoriatic arthritis, fibromyalgia, and other rheumatic diseases.
The Pan American League of Associations of Rheumatology (PANLAR), founded in 1943, gathers the scientific societies of rheumatology, health professionals related to rheumatic illnesses and rheumatic patient associations of all countries in the Americas.
Psoriasis and Psoriastic Arthritis Clinics Multicenter Advancement Network (PPACMAN). Mission statement: "To nucleate psoriatic disease combined clinics and centers to advance a multi-level approach to psoriatic patients, increase disease awareness and accelerate management."
The Psoriasis International Network (PIN) is a joint action of FRT - Fondation René Touraine - an international foundation for dermatology - and the EADV Psoriasis Task Force.
PIN gathers at present over 4700 dermatologists from some 95 countries, as well as rheumatologists and other health professionals involved in psoriasis management. PIN also collaborates with 40 patient associations.
MISSION STATEMENT: To find a cure for psoriasis and psoriatic arthritis. To eliminate the devastating effects through research, advocacy and education.
We’re a team of healthcare writers and professionals who are committed to helping people with rheumatoid arthritis live full, happy lives despite their diagnosis.
The International Federation of Psoriasis Associations (IFPA) is a non profit organization made up of psoriasis associations from around the world.
The National Psoriasis Foundation (NPF) is a non-profit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those affected.
The Psoriasis Association is the leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals- in the UK.
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is a UK registered charity dedicated to providing a positive approach for people affected by psoriasis and psoriatic arthritis.
The mission of SPARTAN is foster research and education in spondyloarthritis in the United States. SPARTAN members accomplish this mission by engaging in specific research projects and through an annual meeting, which highlights important education and research programs.
This is a website dedicated to helping people suffering from the Chronic Skin Disease Psoriasis.
A fully independent online resource. Pharmacists, product formulators and healthcare professionals assess and review the best OTC scalp psoriasis treatments on the market today.
These resources are designed for people living with psoriatic arthritis and those who help support them. You can use them by yourself or with your healthcare provider.
A Patient's Guide to Treatments for Psoriatic Arthritis
This guide has been written by members of GRAPPA’s patient research partner team, with support from GRAPPA’s Treatments Recommendations group.
If you wish to provide feedback about this patient guide, please contact us at [email protected]
Patient Webinars
Will Changing Your Lifestyle Habits Help Your Psoriatic Arthritis and Spondyloarthritis?
Hear renowned rheumatologist Dr. Elaine Husni from the Arthritis and Musculoskeletal Treatment Center at Cleveland Clinic discuss with patients Brian LaFoy and Brandon Robert myths and solutions for changing lifestyle habits that can impact psoriatic arthritis (PsA) and spondyloarthritis (SpA) care.
This is the last episode in CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA.
This program is supported by an educational grant from Pfizer Inc.
Spondyloarthritis and Psoriatic Arthritis Treatment Update
Please join Atul Deodhar, MD, Oregon Health & Science University (Portland); Joerg Ermann, MD, Brigham and Women’s Hospital and Harvard Medical School (Boston); and Philip Mease, MD, Swedish Medical Center/Providence St. Joseph Health, University of Washington, and Rheumatology Associates (Seattle) in this clinical program to update health care providers on the latest treatments for spondyloarthritis (SpA) and psoriatic arthritis (PsA).
Two patients — Roz Tolliver and John Latella will be present to tell their stories and provide insights into how they have navigated their own treatment decisions.
This is part of the CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA.
This program is supported by an educational grant from Pfizer Inc.
Understanding and Managing Pain and Fatigue in Spondyloarthritis and Psoriatic Arthritis
Join Rheumatologists Dr. Philip Mease, from the University of Washington and Seattle Rheumatology Associates and Professor Ernest Choy, MD, head of Rheumatology and Translational Research at the Division of Infection and Immunity and Director of the Cardiff Regional Experimental Arthritis Treatment and Evaluation Center at Cardiff University School of Medicine, Wales (UK) to learn the newest information regarding Understanding and Managing Pain and Fatigue in SpA and PsA.
Topics will provide an understanding of disease mechanisms in pain and cover why fatigue is a core outcome in rheumatic diseases including PsA. The causes of fatigue and how to assess and treat fatigue will be covered. Patients Minionette “Mini” Wilson and Melissa Leeolou will provide insights to their disease experiences and management of both pain and fatigue.
This is part of the CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA.
This program is supported by an educational grant from Pfizer Inc.
Juvenile Spondyloarthritis and Juvenile Psoriatic Arthritis
This is the first video of the CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA, which we discuss the spectrum and classification of JSpA and JPsA, imaging pitfalls, and the treatments and outcomes for disease management.
This program is supported by an educational grant from Pfizer Inc.
Patient Podcasts
Will Changing Your Lifestyle Habits Help Your Psoriatic Arthritis and Spondyloarthritis?
Hear renowned rheumatologist Dr. Elaine Husni from the Arthritis and Musculoskeletal Treatment Center at Cleveland Clinic discuss with patients Brian LaFoy and Brandon Robert myths and solutions for changing lifestyle habits that can impact psoriatic arthritis (PsA) and spondyloarthritis (SpA) care.
This is the last episode in CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA.
This program is supported by an educational grant from Pfizer Inc.
What’s Juvenile Spondyloarthritis or JSpA?
Join rheumatologist Dr. Hema Srinivasalu from Children’s National Hospital in Washington, D.C., Wendy Olsder, Asad Khan, and Aamena Hameed as they answer what is Juvenile Spondyloarthritis, how it relates to psoriatic arthritis, typical symptoms, diagnosis, treatments and what it means to live with JSpA.
This is the first in four CAPES (Clinician and Patient Education Series) episodes presented by the National Psoriasis Foundation (NPF), Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), Spondyloarthritis Research and Treatment Network (SPARTAN), and the Spondylitis Association of America (SAA).
This program is supported by an educational grant from Pfizer Inc.
Treatment Choices for Psoriatic Arthritis and Spondyloarthritis
Listen as renowned rheumatologist Dr. Atul Deodhar from OHSU in Portland, OR, meets with patients John Latella and Roz Tolliver to discuss the latest treatments for psoriatic arthritis (PsA) and spondyloarthritis (SpA), management tips, and how treatment choices are identified.
This is the third episode in CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA.
This program is supported by an educational grant from Pfizer Inc.
Living with Chronic Pain and Fatigue in PsA and SpA
Chronic pain and fatigue in psoriatic arthritis (PsA) and spondyloarthritis (SpA) can be challenging. Rheumatologists Dr. Philip Mease, from the Seattle Rheumatology Associates, and Dr. Ernest Choy, from the Cardiff University School of Medicine, with patients Melissa Leeolou and Minionette “Mini” Wilson discuss causes, symptoms, risks, and tips for managing both successfully.
This is the second episode in CAPES (Clinician and Patient Education Series) presented by NPF, GRAPPA, SPARTAN, and SAA.
This program is supported by an educational grant from Pfizer Inc.