Patient Research Partners

To acknowledge the importance of patients in the development of recommendations for the management or diagnosis of psoriatic disease, GRAPPA created a Patient Research Partners (PRP) Group in 2012.  GRAPPA’s PRPs comprise patients from around the world who represent the patient perspective on GRAPPA working groups and committees. The goal is to improve methodology and research outcomes and further the credibility of the results by completing the picture with incorporation of the patient perspective.  GRAPPA supports the EULAR recommendations for the inclusion of patient representatives published in the 'Annals of the Rheumatic Diseases'. 

GRAPPA works closely with other organizations such as OMERACT and IDEOM that also incorporate patients into their work.

Chair of the GRAPPA PRP (Patient Research Partners) Group is Denis O'Sullivan (Ireland). Chair-Elect is Ingrid Steinkoenig (USA). In Members include over a dozen patients from the Americas, Europe, and Asia. If you are a patient who is interested in participating as a volunteer GRAPPA patient research partner, please speak to your GRAPPA rheumatologist or dermatologist about that possibility.